Website: https://rarediseases.org Phone: 1-800-999-6673 NORD provides patient assistance programs, advocacy resources, educational materials, support resources, and connections to the rare disease community nationwide.

Genetic and Rare Diseases Information Center (GARD) – NIH

Website: https://rarediseases.info.nih.gov GARD offers reliable information about rare and genetic diseases, treatment options, support organizations, and research opportunities.

Mental Health & Crisis Resources

988 Suicide & Crisis Lifeline

Website: https://988lifeline.org Phone/Text: 988 24/7 confidential support for anyone experiencing emotional distress, mental health crises, suicidal thoughts, or substance use crises.

Substance Abuse and Mental Health Services Administration (SAMHSA)

Website: https://www.samhsa.gov National Helpline: 1-800-662-HELP (4357) Provides treatment referral services and information for mental health and substance use disorders.

National Alliance on Mental Illness (NAMI)

Website: https://www.nami.org Helpline: 1-800-950-NAMI (6264) Offers education, support groups, advocacy, and mental health resources for individuals and families.

Autoimmune & Chronic Illness Resources

American Autoimmune Related Diseases Association (AARDA)

Website: https://autoimmune.org Phone: 1-800-598-4668 Provides advocacy, education, and awareness surrounding autoimmune diseases and related conditions.

Chronic Disease Coalition

Website: https://chronicdiseasecoalition.org Focused on advocacy and improving quality of life for individuals living with chronic illness.

Chronic Pain & Fatigue Resources
U.S. Pain Foundation

Website: https://uspainfoundation.org Provides support groups, educational resources, advocacy efforts, and wellness tools for individuals living with chronic pain.

Solve ME/CFS Initiative

Website: https://solvecfs.org Supports individuals affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome through advocacy, education, and research initiatives.

Disability Rights & Advocacy
National Disability Rights Network (NDRN)

Website: https://www.ndrn.org Phone: 202-408-9514 Connects individuals to disability advocacy and protection agencies in every state.

Disability Rights Education & Defense Fund (DREDF)
 

Website: https://dredf.org Advocates for the civil and human rights of people with disabilities.
 

Financial Assistance & Patient Support
Patient Advocate Foundation

Website: https://www.patientadvocate.org Phone: 1-800-532-5274 Provides case management services, financial aid resources, insurance assistance, and patient advocacy.

PAN Foundation

Website: https://www.panfoundation.org Phone: 1-866-316-7263 Offers financial assistance for medications and healthcare costs for eligible patients.

Caregiver & Family Support
Caregiver Action Network

Website: https://www.caregiveraction.org Phone: 1-855-227-3640 Provides education, peer support, and practical resources for caregivers.

Family Caregiver Alliance

Website: https://www.caregiver.org Offers caregiver support, policy advocacy, and educational resources.
 

Invisible Disabilities & Workplace Support
Invisible Disabilities Association

Website: https://invisibledisabilities.org Provides education, advocacy, and community support for people living with invisible disabilities and chronic illness.

Job Accommodation Network (JAN)

Website: https://askjan.org Phone: 1-800-526-7234 Provides free guidance regarding workplace accommodations and disability employment issues.

Medical Travel & Transportation Assistance
Angel Flight America

Website: https://www.angelflightamerica.org Coordinates free air transportation for medical treatment and healthcare access.

Ronald McDonald House Charities

Website: https://rmhc.org Provides lodging and support for families traveling for medical care.
 

Emergency & Crisis Resources
Emergency Services

Call 911 for immediate emergencies.
Crisis Text Line
Website: https://www.crisistextline.org Text HOME to 741741 Free 24/7 mental health crisis support via text message.
 

Website Disclaimer

This resource guide is for informational purposes only and is not intended to provide medical, legal, mental health, or financial advice. Resource availability, eligibility requirements, phone numbers, and website information may change over time. Please contact organizations directly to confirm current services and information. © Invisibly Empowered – From Surviving to Thriving